Wednesday, May 12, 2010
Results, We Have Them
From the MRI: everything looks good. Nothing they could see that would cause the seizures. EEG: They did see something: generalized seizure patterns My little girl is epileptic. I don't know how to feel about this. I was prepared for the rolandic seizure diagnosis, but this is more. Instead of being limited to sleeping moments, the seizures can happen anytime, anywhere. The fact that we've only noticed ones during sleep is just a fluke. In my last post, I commented on how odd the tech's comment was when I asked if Alta'd had a seizure during the test. She said: "I didn't see anything you described to me." So I wondered what she did see. Now I know. Toward the end of the test her eyes fluttered, and that fluttering matched up with the seizure patterns on the EEG. We need to watch her for the small seizures, like fluttering eyes and staring into space, as well as the big ones. I feel like crying over it, but I'm not sure why exactly. I was prepared for the other one, maybe I would have cried a little over that one too, I don't know. But this is more than I expected. On the other hand, I'm very grateful. I have an answer, and that's what I wanted, right? I also know that it could be worse, and it's not. The other reason to be grateful, it's not a brain tumor causing this. That would definitely be worse. I guess it's a mixed bag of emotions. Gratitude that things aren't worse, worried about my baby girl's future, and how epilepsy will affect her. On the fun side: Alta wants to be Seizure Girl for Halloween, and we're planning a comic book about her character in the summer.